
Monday Mar 24, 2025
Navigating Life with Hypermobile Ehlers-Danlos Syndrome: Lauren Brown's Journey
In this episode of Zebra Talks, host Dr. Libby Hinsley discusses the challenges and experiences of living with hypermobility syndromes with guest Lauren Brown. Diagnosed with hypermobile Ehlers-Danlos Syndrome and POTS, Lauren shares her long and complicated journey through a diagnostic maze, frequent medical gaslighting, and the significant impact of finding knowledgeable and empathetic healthcare providers.
Despite her struggles, Lauren started a YouTube channel, POTS Zebra, to raise awareness and support others facing similar conditions. This episode highlights the importance of community, persistence, and self-advocacy in managing chronic illnesses.
Highlights of this episode include:
00:00 Introduction to Zebra Talks
00:35 Meet Lauren Brown: A Journey with EDS and POTS
01:44 Early Signs and Misdiagnoses
04:13 High School Struggles and a Breakthrough
06:29 College and Beyond: Continued Challenges
12:45 A Lifesaving Diagnosis
13:46 Ongoing Health Battles and Advocacy
19:11 Finding the Right Doctor
19:45 Sharing the Journey
22:02 Medical Gaslighting and Bias
23:11 The Importance of Diagnosis
27:19 Building a Support Network
30:10 Starting a YouTube Channel
33:11 Resources and Support
36:02 Final Thoughts and Community
Comments (0)
To leave or reply to comments, please download free Podbean or
No Comments
To leave or reply to comments,
please download free Podbean App.